Vaslav Nijisnsky was perhaps the greatest ballet dancer of all time. I first read about this talented artist,who was born on 12th March in 1889, in Colin Wilson’s book, ‘The Outsider’. It was a moving account of the extraordinary life and career of Nijinsky. He could perform en pointe with ease and his seemingly gravity-defying leaps were also legendary. Unfortunately he had a psychiatric breakdown when he was just 29 years old and died after battling with the illness for thirty years.
Nijinsky kept a meticulous account of his psychological travails in a diary which he wrote within a short span of six weeks. I read his poignant account when he was in the cusp of sanity and mental illness, in the Internet Archives. It was quite a difficult read and a revealing account of early stages of decline into a psychotic breakdown. For instance, in an accurate account of delusion of influence, he wrote “I write without thinking. I scratched my nose, thinking something was tickling me, but I realised that God did this on purpose so that I would correct my notebook. God writes all this for me”. I delved deeper into his mental illness through various sources. He was first taken to Eugene Bleuler at the Burgholzli. After examining him, Bleuler came out and told his wife Romola, “Now, my dear, be very brave. You have to take your child away; you have to get a divorce. Unfortunately, I am helpless. Your husband is incurably insane. I must seem to be brutal, but I have to be able to save you and your child – two lives. We physicians must try to save those whom we can; the others, unfortunately, we have to abandon to their cruel fate. I am an old man. I have sacrificed fifty years of my life to save them. I have searched and studied; I know the symptoms; I can diagnose it; but I don’t know. I wish I could help, but do not forget, my child, that sometimes miracles happen”. When Romola came out after the consultation, Nijisnsky’ response was “you are bringing me my death-warrant”. As he became quite symptomatic, he was forcibly taken to the Sanatorium Bellevue Kreuzlingen, where he was treated by Dr Binswanger. Romola took her husband to be examined by Jung and Sigmund Freud. Freud opined that psycho-analysis was useless in cases of schizophrenia. In spite of being taken care of by the giants in the history of psychiatry, he grew worse, continued to have hallucinations and was violent at times. Hoping for a miracle, Romola took him on a pilgrimage to Lourdes. “We spent several days there,” she wrote. “I went with Vaslav to the Grotto. I washed his forehead in the spring and prayed. I hoped and hoped, but he was not cured. Maybe my faith was not deep enough”. That year Romola heard about some new treatment approaches in schizophrenia and got in touch with Dr Sakel, who had invented insulin coma treatment. It was arranged that Sakel himself should administer the treatment. Bleuler, who saw him twenty years earlier, paid him a visit after 20 years and told Romola,”‘My dear Madame Nijinsky, many years ago I had the cruel task of informing you that, according to medical knowledge as it then was, your husband was incurably insane. I am happy today to be able to give you hope. This young colleague of mine has discovered a treatment for which I searched in vain for over forty years. I am proud of him. And of you, because you did not follow the advice I gave you so many years ago to divorce your husband. You stood by him during those years of mental dimness, you helped him through this terrible illness, and now I believe you will be rewarded. He will once more become himself.” The insulin shock had freed him from hallucinations and his restlessness abated significantly. Unfortunately Nijinsky never fully recovered from his illness.The Nazi regime gave orders to exterminate all psychiatric patients and he had to hide in a cave. After the war, he and Romola moved to London. He never saw any psychiatrist nor did he required admission during his time in the UK. He passed away on 8 April 1950 due to ‘uremia with chronic nephritis’. Most of the accounts about Nijinsky focus on his illness and the kind of treatment he received. What is missing in these narratives is the crucial role played by his wife Romona. Nijinsky was not an easy person to handle during his psychotic episodes and at times even became physical. Once during their walks in the mountain, Nijinsky suddenly pushed her and she narrowly missed falling into a precipice. She gathered herself, put her around him, remembering Bleuler’s advice that “one should never lose one’s nerve when a mental patient becomes agitated or violent; on the contrary, then one must show utter fearlessness.” She was constantly by his side, tending to him with affection, “Every afternoon I tried to interest Vaslav in small and simple matters, things which were related to his art, his youth or his hobbies. At first, it was an extremely thankless task. His tendency was to withdraw into himself…One had to draw his attention to something and then sustain it. It might be a rose in the garden, which I would show him and make him gather”. Nijinsky died in the presence of the woman who had been for thirty-seven years his wife, breadwinner, nurse and a second mother. In his final moments, he stretched out his right hand to Romona, who bent down and kissed it; “Thoughts and feelings were racing in my mind, but the enduring thought was: You were privileged among so many millions of women to share his life, to serve him. God gave him to you. He has taken him back.” Nijinsky’s illness career is a poignant reminder of the suffering associated with schizophrenia and the crucial role of caregivers in tending to those afflicted with it. To have someone who cares at the most difficult and challenging moments in life is truly a blessing. As Rollo May observed, “Care is a state in which something does matter; it is the source of human tenderness.” (I personally wish that lived experiences of people with mental illness and the narratives of caregivers find their rightful place in psychiatry textbooks). Feel free to pen your thoughts here...
32 Comments
Chitra Andrade
3/11/2024 09:23:34 pm
Thanks for sharing, Dr. Ragu. His wife seems to have been an exceptional human being!
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Dr Raguram
3/11/2024 09:34:13 pm
True Chitra. It is the caregive who makes a difference in the course and outcome of schizophrenia
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Lata
3/11/2024 09:31:28 pm
Such a moving narrative! I remember reading the' Outsider' during my M.A. Days and was fascinated by Nizinsky. It was deeply moving to know about his tribulations with Schizophrenia and the undying love his wife showered on him. Thank you for those touching moments.
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Dr Raguram
3/11/2024 09:34:55 pm
Thanks Lata. Unfortunately the Outsider seems to have gone out of the attention of the reading public
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Prathap Tharyan
3/11/2024 09:38:51 pm
Thank you for that. So moving and erudite. As always.
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Dr Raguram
3/11/2024 09:48:13 pm
True Prathap. There's something in the name! And all of them find their own way!
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Dr K S Shubrata
3/11/2024 09:45:26 pm
Such a touching narrative. Thanks for sharing, sir!
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Dr Raguram
3/11/2024 09:46:49 pm
Unfortunately with the onset of the illness, he was unable to perform on the stage
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Jay Sarkar
3/11/2024 10:08:44 pm
Thanks for enlightening me about this man and his devoted caring wife. Knowing and connecting with difficult to like patients/persons is an essential part of their recovery. While medications can ameliorate symptoms, the development of insight, treatment adherence and most importantly finding connections with other human beings and sustaining hope are things that carers bring. Sadly, in my specialty many carers pay a lethal price for this. Thanks Ragu sir
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Dr Raguram Ramanathan
3/11/2024 10:13:20 pm
So true Jay!
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Senthil
3/11/2024 10:47:43 pm
Thank you for your writing Sir. I would not have come across otherwise. I had a passion for working with caregivers in mental health and did some work with them during my initial days in Sydney - came across so many amazing people including young caregivers! But Romona seems to be at a different level to continue this role for 37 years!!! I never stopped wondering at the level of commitment and resilience such people!!!🌷
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Dr Raguram
3/12/2024 09:42:52 am
So true Senthil. Caregivers are our partners in the delivery of mental health services and it is important to recognize and incorporate them in our ambit
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Muthatha
3/11/2024 11:01:43 pm
Thank you Doctor for writing about a topic that is difficult to read... you are truly a medical ethnographer.. tirelessly mining texts to share with us so many varied experiences in human illness / wellness in this age where diversity and compassion are being wiped out steadily.... Yes Ramona is VERY inspiring and I am also touched by Nijinsky's act of writing about himself and his experiences... an act of reaching out to the world ..
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Dr Raguram
3/12/2024 09:44:30 am
Thanks Muthatha. Both Nijinsky and Ramona wrote about the kind of issues that they were faced with in their lives. Each of their account is poignant, offering rich insights into addressing the needs of people in throes of psychological distress
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Muthatha Ramanathan
3/12/2024 09:53:16 pm
Sorry, I must correct myself - it is Romola, not Ramona. I understand she worked on Nijinsky's biography when she found his diary.
Nishanth Jayarajan
3/12/2024 12:21:00 am
Thanks for sharing this moving story sir. Reminded me of the amazing mother of a patient who eventually died by suicide. She requested for an open disclosure during which she said that no one is to be blamed for the death as everyone had tried their best.
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Dr Raguram
3/12/2024 09:46:29 am
Isn't it imperative for us to recognize the efforts of Ramonas in ways that can optimize the care of mentally ill? It is not an easy task to be a caregiver for an illness that can take a tortuous unpredictable course
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Nishanth Jayarajan
3/13/2024 04:22:45 am
Absolutely sir. I wanted to share this in my group of psychiatrists and registrars with your permission. Thanks
Dr Bharathi Challa
3/12/2024 12:30:40 am
Dr Raguram, Thanks for bringing out the unknown lives . What an amazingly wonderful caregiver Romona was. Exemplary will, love, care and compassion.
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Dr Raguram
3/12/2024 09:46:42 am
Thanks Bharathi
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Jamila Koshy
3/12/2024 02:53:57 am
Such a tragic loss; mental illness can break into, and destroy even the most brilliant people's lives.
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Dr Raguram
3/12/2024 09:48:42 am
It is a sad fact that in spite of advances in treatment of schizophrenia, the demands on the caregivers haven't lessened. Medications combat psychotic symptoms but the lives of patients with schizophrenia gets impacted in many ways that poses continuing challenges for the caregivers
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Ranjini Rajgopalan
3/12/2024 03:20:13 am
A very touching story of agony, perseverance and true love! People like Romona are very rare and Nijisnsky’ had been fortunate to have had her by his side despite all .
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Dr Raguram
3/12/2024 09:49:28 am
Thanks Ranjini. It is always the good hearts that make the difference in all walks of life!
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Jayaprakash S R
3/12/2024 09:08:09 am
Though tear jerked by Romona all along the read, I was hopefully looking for it to end, like it does in movies, Nijisnsky clasping Romona's hand & drawing it to his chest with eyes welling with tears of remorse but gratitude. (The feeling for Romona makes you forget the sympathy Nijisnsky commands & the fact he never belonged here to this planet during those 37years, after all). I was disappointed for Romona, the angel! I hope she lived a life after having died for 37or so years. While there's no enigma in Nijinsky's psychosis anymore, wives like Romona remain enigmatic. Thank you Dr Raghu for exposing us to the wonders of the world, once again, as always.
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Dr Raguram
3/12/2024 09:53:24 am
It was a poignant situation for Ramona as she had to tend to him amidst various challenges. Caught in throes of war, they had to change their places of stay and were always short of finances. Nijinsky was also a painter and Ramona arranged an exhibition of his works to raise money, but it was diffcult to transfer money across countries during the war. She was helped to a large extent by good souls who lent a helping hand in times of need
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Nalini. N. R.
3/14/2024 02:47:58 am
The travails that schizophrenic patients go through and the sufferings of the family members continue even today despite the various drugs available. If not for positive symptoms, negative symptoms try the patience of caregivers. Romona from her perspective "lived" a life of being very mindful, with lot of perseverance, hope, conviction that some day he will come out of it. What is very touching is her statement 'may be my faith was not deep enough'. As professionals it is important to recognise the crucial role of caregivers.....
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Krishna Harish
3/15/2024 01:03:02 am
True
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Priyanka Prabhakaran
3/14/2024 08:44:24 am
Thank you for sharing this piece, sir. It's heartening that there is hope for companionship for some, even under such trying circumstances. I'd love to believe that it was love (and the commitment it sometimes engenders) on Ramona's part, and her narrative of "being privileged among so many women..", that led her to do what she did till the very end. My heart, however, goes out to those who feel little of that love, or feeling of privilege, and must yet "do (their) duty". Having "no choice" is a situation carers often find themselves in, and how doubly unfortunate that must be!
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Sudarshan C Y
3/17/2024 05:06:31 pm
The narrative was like a trip down the memory line about Psychopathology, Methods of treatment, Care givers burden. Very unfortunate that many such could not be in the time when Antipsychotics were gaining ground. Out of curiosity, one doubt. Was ECT not given to him?
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Senthil Damodharan
3/23/2024 06:53:12 am
Caring and caregiving, as much as it is directed to the ‘other’, provides direction to the self as well. It appears to crystallize purpose and meaning amidst random vicissitudes, and allows the possibility to find stoicism. This may be a rationalization of one caregiver, but feels useful nevertheless. Thank you so much for providing an opportunity for some reflection.
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Nandini Mullatti
4/8/2024 03:03:05 am
It is indeed a very moving story Sir thank you. How loyal and dedicated was Ramona to give her whole life to the care of her husband truly for better for worse. Thank you for highlighting the plight of the family who bear the burden of caregivers stigma financial pressures etc. In our medical model of care the focus really needs to be widened to include not just the patient but also the psychosocial needs to the carers which you have so movingly depicted.
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